Peripheral Neuropathy is a disorder of the peripheral nerves-the motor, sensory and autonomic nerves that connect the
spinal cord to muscles, skin and internal organs. It usually affects the feet but can also affect the hands and balance (gait)
causing weakness, numbness, tingling and sometimes severe chronic pain. Peripheral Neuropathy's course is variable; it can
come and go, slowly progressing over many years, or it can become severe and debilitating. However, if diagnosed early, can sometimes
be slowed and/or controlled.
MY PERSONAL SYMPTOMS Advanced Axonal Sensory & Autonomic polyneuropathy.
(DVA Accepted disorder) Cause - Nutritional deficiency (alcohol) trying to make women look beautiful, lol. Mine
started in my left foot and toes, pins & needles then progressed to my right side and after I ceased alcohol
into both arms, hands, fingers and then internally into the heart (irregular heart rate)
. Last year aged 65, my GP took my driver's licence off me, as I can't feel anything from my knees down
nor shoulders down. Go to the top of page 3 of this website for those wishing to view Australia's Driving Standards and their
There are symptoms of autonomic neuropathy affecting my internal organs the bladder, urination hesitancy, loose or constipated
bowels, gastroparesis, irregular rapid heart rate, hypotension (124/60), impotence to name just a few! I have
extreme muscle weakness in lower & upper limbs, and severe loss of digital dexterity, "unable to grip objects with my
hands intermittently", lift objects above the level of my waist due to lack of strength/ permanent nerve damage or have
any power to thrown any objects.
My Sensory neuropathic symptoms are very severe, my feet and legs have "constant pins & needles and tightness" (Glove/sock,
constant feeling around my feet, you don't know whether or not you are wearing socks/shoes). Pain NOT fully relieved
by any medication, at best 40-60% on some days on other days no pain relief is possible, pure agony, which makes my Anxiety/depression
more acute. I have difficulty walking more than 20 meters without stoping, and when laying flat the pain is
always exacerbated. I prefer to sit, even standing aggravates the disease and causes the soles of the feet to burn. I
ALWAYS NEED a bed cradle to keep the sheets off my feet and legs, so NOT to exacerbated the pain by touch to my
lower limbs , without a cradle I can't sleep! I generally get at best even with a cradle only 3-5 hours sleep per
night, I have great difficulty getting to sleep or awake about 3am on most mornings during summer. I have to take
Serepax 30mg to sedate myself, the neuropathic feet pain is so severe that I constantly experienced suicidal ideation.
It has now progressed to my upper arms & hands, fingers, symptoms of pins & needles and numbess and sensitivity
24/7 there is also major weakness on the Right side of my body
(possible caused by infrequent mini
The disease itself causes ataxia (loss of balance) however my medication
'Lyrica' Pfizer, also causes loss of balance, and excessive weight gain (increased appetite) and when depressed I comfort
eat, or don't feel like eating, The weight gain affects other organs and can't be reduced by diet and as I can't
walk any great distance or use an exercise bike (because of my Heart condition) I can't reduce the excessive weight, and
then there's the loss of feet sense, loss of Position Sense (my brain doesn't communicate with my feet) in that,
they don't step high enough and I trip then, loose my balance and incur infrequent falls.
The constant pain generated from my lower extermities (feet & legs) 'pins &
needles/intermittent electric shocks' severely exacerbates my diagnosed military related PTSD (Chronic Anxiety) & Depression.
Thus causing frequent suicidal ideation.
Meditation/Relaxation/Tia Chi have NOT totally relieved my
neuropathic pain in the short or long term, but it does reduced my (PTSD) Anxiety & depression symptoms.
Please be mindful though,
NOT all sufferers have this degree of discomfort & disability!
My medications are Lyrica (pregabalin) 375mg daily (225mg mane (morning) and 150mg
at bedtime), plus Endone (oxycodone) 10mg, (5mg morning/5mg bedtime),
some days must top up on extra 5mg
prn (as required). (I have increased my Lyrica to 600mg daily however it never deceased my lower limb/feet pain, I find 425mg
is my therapeutic medium daily dosage).
I can't be treated for PTSD/Major depression due to the fact
that all Psychiatric medications have and can cause Irregular Heart Rate/Palpitations, and in my case I already have Arrhythmia
(Autonomic nerve damage), to take these psychiatric drugs would more than probably cause at least a partial or fatal
Stroke. Suicide is a real possibly due to the fact that when I get severe major depression and can't be medicated I can't
see any light at the end of the tunnel only continuous suffering and want to end my suffering, I need a place of safety to
recover and sedation.
What triggers the PTSD? Any forms of 'Betrayal', 'Smells of Asian Cooking',
'Talking about my overseas service and Islamic religion', at all costs I try to avoid these triggers.
NEVER had family social support, my brother (younger by 4 years) has never seen military service and has never attempted
to understand my mental torment, his response is, Dept. of Veterans Affairs pays your pension get them to support you,
the department have sent him numerous brochures on PTSD and depression to no response. Although he is professionally
educated (Accountant/Senior Queensland Public Servant) he lacks some integrity, & empathy he has an Autocratic personality,
he won't assist or communicate, especially with me. When I returned from my overseas military deployment of 2 years
in 1974, he told that his best mate (Brian) was his new brother, and that relationship has continued to
this very day, and that I deserted him and went overseas in 1972. Then when he married in 1977 he told me he had
acquired a new family, and for me to do the same.
Because Betrayal is one of my triggers for relapse of PTSD,
what my brother did to me following the death of our father in May 2015, was betrayal of what we had agreed too (Dad,
myself and him) prior to dad's death. I feel hostility towards him, our family relationship is one of dysfunction
(since our fathers death he has only spoken to me once), I suffer alone without his or his family support. I hope your
family is more supportive?
Can Peripheral Neuropathy Be Cured?
of peripheral neuropathy can be cured, however most can not, having said that, many can be helped
with pain management with one or more medications. Therapy is directed at treating the underlying disease and at
improving the symptoms with the right medications. An experienced Neurologist, Psychiatrist and/or Pain Specialist can
help sufferer's understand and manage their disease, whereby giving them greater quality of life. Pain
control varies between 40-65% per individual.
What causes neuropathy?
There are many causes of neuropathy: Diabetes,Cancer tumours, Chemotherapy, Alcohol, Autoimmune disorders HIV/AIDs, Spinal
injury, or a result of spinal surgery, prescription Medications, Toxins, and Nutritional imbalances to name just a few.
The following webpages, details the various illnesses and certain prescription medications that can cause this insidious