A Reference to other Neuropathy Groups, Webpages in Australia.
Can sometimes be a secondary disease to
Peripheral Neuropathy is a disorder of the peripheral nerves-the motor, sensory and autonomic nerves that connect the
spinal cord to muscles, skin and internal organs. It usually affects the feet but can also affect the hands and balance (gait)
causing weakness, numbness, tingling and sometimes severe chronic pain. Peripheral Neuropathy's course is variable; it can
come and go, slowly progressing over many years, or it can become severe and debilitating. However, if diagnosed early, can sometimes
be slowed and/or controlled.
MY PERSONAL SYMPTOMS Advanced Axonal Sensory & Autonomic polyneuropathy.
(DVA Accepted disorder)
There are symptoms of autonomic neuropathy affecting my internal organs the bladder, urination hesitancy, loose or constipated
bowels, gastroparesis, irregular rapid heart rate, hypotension (110/55), impotence to name just a few! I have
extreme muscle weakness in lower & upper limbs, and severe loss of digital dexterity, "unable to grip objects with my
hands intermittently", lift objects above the level of my waist due to lack of strength/ permanent nerve damage or have
any power to thrown any objects.
My Sensory neuropathic symptoms are very severe, my feet and legs have "constant pins & needles and tightness" (Glove/sock,
constant feeling around my feet, you don't know whether or not you are wearing socks). Pain NOT fully relieved by any
medication, at best 40-60% on some days on other days no pain relief is possible, pure agony, which makes my Anxiety/depression
more acute. I have difficulty walking more than 20 meters without stoping, and when laying flat the pain is
always exacerbated. I prefer to sit, even standing aggravates the disease and causes the soles of the feet to burn. I
ALWAYS NEED a bed cradle to keep the sheets off my feet and legs, so NOT to exacerbated the pain by touch to my
lower limbs , without a cradle I can't sleep! I generally get at best even with a cradle only 3-5 hours sleep per
night, and awake about 3am on most mornings or can't get to sleep. Playing a relaxation CD calms me sufficiently to get
back to sleep on most occasions. It has now progressed to my upper arms & hands, symptoms of pins & needles
and numbess and sensitivity 24/7 and major weakness on the Right side of my body (neuropathy or stroke?).
disease itself causes ataxia (loss of balance) however my medication 'Lyrica' Pfizer, also causes loss of balance,
and excessive weight gain (increased appetite) and when depressed I comfort eat, or don't feel like eating, The weight
gain affects other organs and can't be reduced by diet and as I can't walk any great distance or use an exercise
bike (because of my Heart condition) I can't reduce the excessive weight, and then there's the loss of feet sense
(my brain doesn't communicate with my feet) in that, they don't step high enough and I trip then, loose my balance and
incur infrequent falls.
The constant pain generated from my lower extermities (feet & legs) 'pins &
needles/intermittent electric shocks' severely exacerbates my diagnosed military related PTSD (Chronic Anxiety) & Depression.
Thus causing frequent suicidal ideation.
Meditation/Relaxation/Tai Chi have totally NOT relieved my
neuropathic pain in the long term, but it has reduced my (PTSD) Anxiety & depression symptoms. Please be
NOT all sufferers have this degree of discomfort & disability!
My medications are Lyrica (pregabalin) 375mg daily (225mg mane (morning) and 150mg
at bedtime), plus Endone (oxycodone) 10mg, (5mg morning/5mg bedtime)
I can't be treated
for PTSD/Major depression due to the fact that all Psychiatric medications can cause Irregular Heart Rate, and in my case
I already have Arrhythmia, to take these drugs would most probably cause a partial of fatal Stroke. Suicide is a real possibly
due to this factor.
Can Peripheral Neuropathy Be Cured?
of peripheral neuropathy can be cured, however most can not, having said that, many can be helped
with pain management with one or more medications. Therapy is directed at treating the underlying disease and at
improving the symptoms with the right medications. An experienced Neurologist, Psychiatrist and/or Pain Specialist can
help sufferer's understand and manage their disease, whereby giving them greater quality of life. Pain
control varies between 40-65% per individual.
What causes neuropathy?
There are many causes of neuropathy: Diabetes,Cancer tumours, Chemotherapy, Alcohol, Autoimmune disorders HIV/AIDs, Spinal
injury, or a result of spinal surgery, prescription Medications, Toxins, and Nutritional imbalances to name just a few.
The following webpages, details the various illnesses and certain prescription medications that can cause this insidious
Drugs & Toxins that Can Induce or Cause Polyneuropathies
Hand and joint conditions can occur in people with or without diabetes. These conditions
are *Carpal tunnel syndrome (CTS), *Peripheral Neuropathy (PN), *Trigger Finger or thumb (also known as flexor tenosynovitis),
*Dupuytren's disease and *limited joint mobility.
Search list of Australian Hand therapy Association