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What is Peripheral Neuropathy? Education & Support for Australian Sufferers.

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Self-Management, Education and Support

Welcome Oriental

This 3 page website is provided for ALL Australian's who are suffering with Peripheral Neuropathy and associated neuropathic pain, to better their the Education and Management of this Insidious disease.

Greg McMahon DVA-TPI (2006)& Age (2015) pensioner)
picture0005.jpg
Although our bodies age and ache, our minds remain active, until some misplace their marbles!

WHAT IS A TPI Pension?

http://qldtpi.org.au/what-is-it-at-tpi/

Hello,My name is
Greg McMahon, I reside in Queensland and I am a Peripheral Neuropathy Sufferer with * 'Nutritional'( Sensory & Autonomic) Neuropathy.  
  
   DVA accepted disease in 2004 Under Veterans Entitlements ACT 1986.
 
 The following websites are supplied to assist Australian sufferer's with Self Management and Education to better understand their symptoms, the causes and available treatments for this insidious progressive disease.
 
 CONTACT me -Greg,
With your questions, comments or for emotional support; this disease can drive you mad, cause depression, don't suffer alone, I am but a email away!

Peripheral Neuropathy explained-

http://www.australiandoctor.com.au/cmspages/getfile.aspx?guid=8131ca4b-8352-49b4-9974-141ee33a303e

http://www.racgp.org.au/afp/2013/march/neuropathic-pain-update/

http://www.apparelyzed.com/neuropathic-pain.html

http://www.ninds.nih.gov/disorders/peripheralneuropathy/detail_peripheralneuropathy.htm

http://en.wikipedia.org/wiki/Fibromyalgia

http://www.lymedisease.org.au/

http://www.lymediseaseaction.org.uk/wp-content/uploads/2013/05/LDA003-2-web-version.pdf

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*American Neuropathy Association, a wealth of information and support,

https://neuropathyjournal.org/

http://www.neuropathy.org

https://www.foundationforpn.org/

A Reference to other Neuropathy Groups, Webpages in Australia.

http://www.gbs-cidp-nsw.org.au/

http://www.ingroup.org.au/

http://cmt.org.au/control/about-cmt

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Erythromelagia,
Can sometimes be a secondary disease to
Neuropathy.

http://www.dermnetnz.org/vascular/erythromelalgia.html

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Peripheral Neuropathy is a disorder of the peripheral nerves-the motor, sensory and autonomic nerves that connect the spinal cord to muscles, skin and internal organs. It usually affects the feet but can also affect the hands and balance (gait) causing weakness, numbness, tingling and sometimes severe chronic pain. Peripheral Neuropathy's course is variable; it can come and go, slowly progressing over many years, or it can become severe and debilitating. However, if diagnosed early, can sometimes be slowed and/or controlled.
MY PERSONAL SYMPTOMS     Advanced  Axonal Sensory & Autonomic  polyneuropathy.  (DVA Accepted disorder)
There are symptoms of autonomic neuropathy affecting my internal organs the bladder, urination hesitancy, loose or constipated bowels, gastroparesis, irregular rapid heart rate, hypotension (110/55), impotence to name just a few! I have extreme muscle weakness in lower & upper limbs, and severe loss of digital dexterity, "unable to grip objects with my hands intermittently", lift objects above the level of my waist due to lack of strength/ permanent nerve damage or have any power to thrown any objects.
My Sensory neuropathic symptoms are very severe, my feet and legs have "constant pins & needles and tightness" (Glove/sock, constant feeling around my feet, you don't know whether or not you are wearing socks). Pain NOT fully relieved by any medication, at best 40-60% on some days on other days no pain relief is possible, pure agony, which makes my Anxiety/depression more acute.  I have difficulty walking more than 20 meters without stoping, and when laying flat the pain is always exacerbated.  I prefer to sit, even standing aggravates the disease and causes the soles of the feet to burn.  I ALWAYS NEED a bed cradle to keep the sheets off my feet and legs, so NOT to exacerbated the pain by touch to my lower limbs , without a cradle I can't sleep! I generally get at best even with a cradle only 3-5 hours sleep per night, and awake about 3am on most mornings or can't get to sleep. Playing a relaxation CD calms me sufficiently to get back to sleep on most occasions.   It has now progressed to my upper arms & hands, symptoms of pins & needles and numbess and sensitivity 24/7 and major weakness on the Right side of my body (neuropathy or stroke?).

The disease itself causes ataxia (loss of balance) however my medication 'Lyrica' Pfizer, also causes loss of balance, and excessive weight gain (increased appetite) and when depressed I comfort eat, or don't feel like eating,  The weight gain affects other organs and can't be reduced by diet and as I can't walk any great distance or use an exercise bike (because of my Heart condition) I can't reduce the excessive weight, and then there's the loss of feet sense (my brain doesn't communicate with my feet) in that, they don't step high enough and I trip then, loose my balance and incur infrequent falls.
The constant pain generated from my lower extermities (feet & legs)  'pins & needles/intermittent electric shocks' severely exacerbates my diagnosed military related PTSD (Chronic Anxiety) & Depression. Thus causing frequent suicidal ideation.
Meditation/Relaxation/Tai Chi have totally NOT relieved my
neuropathic pain in the long term, but it has reduced my (PTSD) Anxiety & depression symptoms. Please be mindful though,
NOT all sufferers have this degree of discomfort & disability!
 My medications are Lyrica (pregabalin) 375mg daily (225mg  mane (morning) and 150mg at bedtime), plus Endone (oxycodone) 10mg, (5mg morning/5mg bedtime)

I can't be treated for PTSD/Major depression due to the fact that all Psychiatric medications can cause Irregular Heart Rate, and in my case I already have Arrhythmia, to take these drugs would most probably cause a partial of fatal Stroke. Suicide is a real possibly due to this factor.
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Can Peripheral Neuropathy Be Cured?

Some types of peripheral neuropathy can be cured, however most can not, having said that, many can be helped with pain management with one or more medications.  Therapy is directed at treating the underlying disease and at improving the symptoms with the right medications. An experienced Neurologist, Psychiatrist and/or Pain Specialist can help sufferer's understand and manage their disease, whereby giving them greater quality of life.  Pain control varies between 40-65% per individual.
 
What causes neuropathy?
 
There are many causes of neuropathy: Diabetes,Cancer tumours, Chemotherapy, Alcohol, Autoimmune disorders HIV/AIDs, Spinal injury, or a result of spinal surgery, prescription Medications, Toxins, and Nutritional imbalances to name just a few.  
The following webpages, details the various illnesses and certain prescription medications that can cause this insidious disorder.

Drugs & Toxins that Can Induce or Cause Polyneuropathies

http://www.clevelandclinicmeded.com/medicalpubs/diseasemanagement/neurology/peripheral-neuropathy/

Diabetic Neuropathy

http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Diabetic_neuropathy

Chemotherapy Induced-

http://www.myelomabeacon.com/news/2012/03/26/drug-induced-peripheral-neuropathy-in-multiple-myeloma-patients-part-1-what-is-it-and-who-is-at-risk/

http://www.myeloma.org.au/resources/PN%20book.pdf

http://ons.metapress.com/content/38054849w7731327/fulltext.pdf

http://onlinelibrary.wiley.com/doi/10.3322/caac.21204/full

http://emedicine.medscape.com/article/1171558-clinical

Alcoholic Neuropathy-

http://www.nlm.nih.gov/medlineplus/ency/article/000714.htm

Medication Induced-

http://www.diseasesandconditions.net/peripheral_neuropathy.html

HIV-

http://napwha.org.au/health-treatment/hiv-treatment/side-effects-resistance-and-adherence/real-pain

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*Diabetic Neuropathy,

http://www.diabetes.usyd.edu.au/foot/Pain1.html

http://diabetes.webmd.com/diabetes-neuropathy

Hand and joint conditions can occur in people with or without diabetes. These conditions are *Carpal tunnel syndrome (CTS), *Peripheral Neuropathy (PN), *Trigger Finger or thumb (also known as flexor tenosynovitis), *Dupuytren's disease and *limited joint mobility.
Search list of Australian Hand therapy Association webpage,

http://www.wesleyhandcentre.com.au/patientservices.html

http://www.davidmelsom.com.au/

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