A Reference to other Neuropathy Groups, Webpages in Australia.
Can sometimes be a secondary disease to
Peripheral Neuropathy is a disorder of the peripheral nerves-the motor, sensory and autonomic nerves that connect the
spinal cord to muscles, skin and internal organs. It usually affects the feet but can also affect the hands and balance (gait)
causing weakness, numbness, tingling and sometimes severe chronic pain. Peripheral Neuropathy's course is variable; it can
come and go, slowly progressing over many years, or it can become severe and debilitating. However, if diagnosed early, can sometimes
be slowed and/or controlled.
MY PERSONAL SYMPTOMS Advanced Axonal Sensory & Autonomic polyneuropathy.
There are symptoms of autonomic neuropathy affecting my internal organs the bladder, urination hesitancy, loose or constipated
bowels, Gastroparesis, irregular rapid heart rate, hypotension (105/55)), impotence to name just a few! I have
extreme muscle weakness in lower & upper limbs, and severe loss of digital dexterity, "unable to grip objects with my
hands intermittently, lift objects above the level of my waist due to lack of strength/ permanent nerve damage or have
any power to thrown objects above my head and more than 5 meters".
My Sensory neuropathic symptoms are very severe, my feet and legs have "constant pins & needles and tightness" (Glove/sock,
constant feeling around my feet, you don't know whether or not you are wearing socks). Pain NOT fully relieved by any
medication, at best 40-60% on some days on other days no pain relief is possible, which makes my Anxiety/depression more acute.
I have difficulty walking more than 20 meters without stoping, and when laying flat the pain is always exacerbated.
I prefer to sit, even standing aggravates the disease and causes the soles of the feet to burn. I ALWAYS
NEED a bed cradle to keep the sheets off my feet and legs, so NOT to exacerbated the pain by touch to my lower
limbs , without a cradle I can't sleep! I generally get at best even with a cradle only 3-5 hours sleep per night,
and awake about 3am on most mornings or can't get to sleep. Playing 4KQ music on my hand held radio calms me sufficiently
to get back to sleep on most occasions. It has now progressed to my upper arms & hands, symptoms of pins &
needles and numbess and sensitivity 24/7.
A right paracentral DISC Osteophyte complex is present at C5/6 impinging
on my nerve roots, evidence of cervical spondylosis and exacerbating the pins & needles in my hands.
disease itself causes ataxia (loss of balance) however my medication 'Lyrica' Pfizer, also causes loss of balance,
and excessive weight gain (increased appetite) and when depressed I comfort eat, especially crave sweets, The weight
gain affects other organs and can't be reduced by diet and as I can't walk any great distance or use an exercise
bike (because of my Heart condition) I can't reduce the excessive weight, and then there's the loss of feet sense
(my brain doesn't communicate with my feet) in that, they don't step high enough and I trip then, loose my balance and
incur infrequent falls.
The constant pain generated from my lower extermities (feet & legs) 'pins &
needles/intermittent electric shocks' severely exacerbates my diagnosed military related PTSD (Chronic Anxiety) & Depression.
Thus causing frequent suicidal ideation and necessitating infrequent psychiatric inpatient treatments to try
and regulate my medications.
Meditation/Mindfulness/Relaxation has totally NOT relieved my
neuropathic pain in the long term. Please be mindful though,
NOT all sufferers have this degree of discomfort & disability!
My medications are Lyrica (pregabalin) 375mg daily (225mg mane (morning) and 150mg
at bedtime), plus Endone (oxycodone) 7.5mg, (5mg morning/2.5mg bedtime)
Can Peripheral Neuropathy Be Cured?
Some types of peripheral neuropathy can be cured, however most can
not, having said that, many can be helped with pain management with one or more medications. Therapy
is directed at treating the underlying disease and at improving the symptoms with the right medications. An experienced Neurologist,
Psychiatrist and/or Pain Specialist can help sufferer's understand and manage their disease, whereby giving
them greater quality of life. Pain control varies between 40-65% per individual.
What causes neuropathy?
There are many causes of neuropathy: Diabetes,Cancer tumours, Chemotherapy, Alcohol, Autoimmune disorders HIV/AIDs, Spinal
injury, or a result of spinal surgery, prescription Medications, Toxins, and Nutritional imbalances to name just a few.
The following webpages, details the various illnesses and certain prescription medications that can cause this insidious
General Disease Management-
Hand and joint conditions can occur in people with or without diabetes. These conditions are *Carpal tunnel syndrome
(CTS), *Peripheral Neuropathy (PN), *Trigger Finger or thumb (also known as flexor tenosynovitis), *Dupuytren's disease and
*limited joint mobility.
Search list of Australian Hand therapy Association webpage,